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1.
J Paediatr Child Health ; 59(2): 229-241, 2023 02.
Artigo em Inglês | MEDLINE | ID: mdl-36628540

RESUMO

Achondroplasia is the most common form of skeletal dysplasia. In addition to altered growth, children and young people with achondroplasia may experience medical complications, develop and function differently to others and require psychosocial support. International, European and American consensus guidelines have been developed for the management of achondroplasia. The Australian focused guidelines presented here are designed to complement those existing guidelines. They aim to provide core care recommendations for families and clinicians, consolidate key resources for the management of children with achondroplasia, facilitate communication between specialist, local teams and families and support delivery of high-quality care regardless of setting and geographical location. The guidelines include a series of consensus statements, developed using a modified Delphi process. These statements are supported by the best available evidence assessed using the National Health and Medicine Research Council's criteria for Level of Evidence and their Grading of Recommendations Assessment, Development and Evaluation (GRADE). Additionally, age specific guides are presented that focus on the key domains of growth, medical, development, psychosocial and community. The guidelines are intended for use by health professionals and children and young people with achondroplasia and their families living in Australia.


Assuntos
Acondroplasia , Humanos , Criança , Adolescente , Austrália , Acondroplasia/terapia , Acondroplasia/psicologia , Consenso , Qualidade da Assistência à Saúde , Comunicação
3.
J Occup Ther Sch Early Interv ; 12(1): 129-143, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31289605

RESUMO

School-based occupational therapists are well-equipped to prepare adolescents to transition from the education system to work and live in their communities, but they report challenges in securing their place on post-secondary transition planning teams. We argue that occupational therapists' efforts to advocate for their role in post-secondary transition could be strengthened by a deeper engagement with what is considered 'best practice' in transition planning: improving students' ability and opportunity to exercise self-determination. In this commentary, we review the self-determination evidence-base; identify congruence between the underlying philosophies of self-determination and occupational therapy; and highlight gaps in existing self-determination models that occupational therapists are uniquely posed to fill by focusing on self-determination as they support transition age students.

4.
Occup Ther Health Care ; 29(4): 411-28, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-26120880

RESUMO

The population of immigrant children in the United States has increased dramatically. Little is known about how immigrant children, especially those with disabilities, fare on outcomes relevant to occupational therapy such as participation in home, school, and community activities. Using secondary data from the Making Connections survey, we compared social participation outcomes and predictors for children with/without disabilities from underserved immigrant and nonimmigrant households in a sample of 2,295 children aged 3 to 17 years. We found that social participation rates differed significantly for children based on their disability and immigrant status and were lowest for immigrant children with disabilities. Several contextual factors were found to be associated with social participation of immigrant children, such as health insurance coverage, household education, household connectedness with the neighborhood, and access to computers and the Internet. Implications of these findings for occupational therapy practice and research are discussed.


Assuntos
Crianças com Deficiência , Emigrantes e Imigrantes , Participação Social , Adolescente , Criança , Pré-Escolar , Pessoas com Deficiência , Características da Família , Feminino , Humanos , Internet , Masculino , Terapia Ocupacional , Pobreza , Características de Residência , Classe Social , Inquéritos e Questionários , Estados Unidos
5.
Nurs Clin North Am ; 47(4): 557-66, 2012 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-23137606

RESUMO

Promoting a healthy workplace in academic nursing settings is vital to recruit new faculty and enhance the work life of all faculty and staff for retention and happiness. When a healthy work environment is fostered, incivility becomes unacceptable, and individuals embrace a culture where all can flourish. This article addresses the imperative of a healthy workplace, with practical suggestions for making the academic setting in schools of nursing one of optimism and confidence where future generations of nurse leaders are developed.


Assuntos
Docentes de Enfermagem , Relações Interprofissionais , Escolas de Enfermagem/organização & administração , Docentes de Enfermagem/provisão & distribuição , Humanos , Cultura Organizacional , Local de Trabalho/organização & administração , Local de Trabalho/psicologia
6.
Nurs Educ Perspect ; 32(6): 375-9, 2011.
Artigo em Inglês | MEDLINE | ID: mdl-22235693

RESUMO

Nursing students from disadvantaged backgrounds must overcome many barriers in order to succeed. This article will focus on how a multidisciplinary team helped 76 percent of these high-risk students persist in their nursing programs by addressing some of these barriers. Three baccalaureate nursing schools in the Texas Medical Center embarked on a three-year retention program designed to enhance the success of students identified by federal criteria as being at risk. Multidisciplinary teams led various activities, including a study skills component, which included preparing for lectures, taking notes, critical thinking, and test-taking strategies. Also addressed were written and oral communication skills, medical terminology, critical thinking, career coaching, and socialization activities. Collaboration among faculty and students at the three schools was key to the success of the program.


Assuntos
Diversidade Cultural , Bacharelado em Enfermagem , Grupos Minoritários , Apoio Social , Ensino/métodos , Humanos , Grupos Minoritários/psicologia , Socialização , Evasão Escolar/psicologia , Texas
7.
Nurse Educ ; 32(4): 168-72, 2007.
Artigo em Inglês | MEDLINE | ID: mdl-17627209

RESUMO

Recent studies have identified a problematic gap for nursing students between terse clinical writing and formal academic writing. This gap can create a potential barrier to academic and workplace success, especially for disadvantaged nursing students who have not acquired the disciplinary conventions and sophisticated writing required in upper-level nursing courses. The authors demonstrate the need for writing-in-the-discipline activities to enhance the writing skills of nursing students, describe the technical writing workshops they developed to mentor minority and disadvantaged nursing students, and provide recommendations to stimulate educator dialogue across disciplines and institutions.


Assuntos
Bacharelado em Enfermagem/organização & administração , Mentores , Grupos Minoritários/educação , Ensino de Recuperação/organização & administração , Estudantes de Enfermagem , Redação , Atitude do Pessoal de Saúde , Currículo , Necessidades e Demandas de Serviços de Saúde , Humanos , Relações Interprofissionais , Mentores/psicologia , Grupos Minoritários/psicologia , Pesquisa em Educação em Enfermagem , Pesquisa Metodológica em Enfermagem , Pobreza/psicologia , Competência Profissional , Avaliação de Programas e Projetos de Saúde , Apoio Social , Estudantes de Enfermagem/psicologia , Texas
8.
Nurs Adm Q ; 29(2): 146-53, 2005.
Artigo em Inglês | MEDLINE | ID: mdl-15923978

RESUMO

This study used a descriptive comparative design in which the skills/attributes identified by women leaders were compared to the skills/attributes identified by the nurse executives (NEs). For the women leaders and NEs, 6 factors were identified through principal components analysis: (1) personal integrity, (2) strategic vision/action orientation, (3) team building/communication skills, (4) management and technical competencies, (5) people skills (eg, empowering others, networking, valuing diversity, working collaboratively), and (6) personal survival skills/attributes (eg, political sensitivity, self-direction, self-reliance, courage, and candor). The items that received the highest level of agreement regarding importance for both groups were contained in the personal integrity factor, which included ethical standards, trustworthiness, and credibility. These factors are discussed and implications for leadership development and nursing administration graduate programs are identified.


Assuntos
Pessoal Administrativo/psicologia , Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Liderança , Enfermeiros Administradores , Competência Profissional/normas , Mulheres Trabalhadoras/psicologia , Caráter , Comunicação , Comportamento Cooperativo , Currículo/normas , Técnica Delphi , Educação de Pós-Graduação em Enfermagem/normas , Análise Fatorial , Feminino , Previsões , Humanos , Relações Interprofissionais , Avaliação das Necessidades , Enfermeiros Administradores/educação , Enfermeiros Administradores/organização & administração , Enfermeiros Administradores/psicologia , Papel do Profissional de Enfermagem , Supervisão de Enfermagem/normas , Gestão de Recursos Humanos/normas , Texas
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